Journal article
What is the functional mobility and quality of life in patients with cerebral palsy following single-event multilevel surgery?
- Abstract:
- Purpose To report functional mobility in patients with diplegic cerebral palsy (CP) at long-term follow-up after single-event multilevel surgery (SEMLS). The secondary aim was to assess the relationship between functional mobility and quality of life (QoL) in patients previously treated with SEMLS. Methods A total of 61 patients with diplegic CP, mean age at surgery 11 years, eight months (sd 2 years, 5 months), were included. A mean of eight years (sd 3 years, 10 months) after SEMLS, patients were contacted and asked to complete the Functional Mobility Scale (FMS) questionnaire over the telephone and given a weblink to complete an online version of the CP QOL Teen. FMS was recorded for all patients and CP QOL Teen for 23 patients (38%). Results Of patients graded Gross Motor Function Classification System (GMFCS) I and II preoperatively, at long-term follow-up the proportion walking independently at home, school/work and in the community was 71% (20/28), 57% (16/28) and 57% (16/28), respectively. Of patients graded GMFCS III preoperatively, at long-term follow-up 82% (27/33) and 76% (25/33) were walking either independently or with an assistive device at home and school/work, respectively, while over community distances 61% (20/33) required a wheelchair. The only significant association between QoL and functional mobility was better ‘feelings about function’ in patients with better home FMS scores (r = 0.55; 95% confidence interval 0.15 to 0.79; p = 0.01). Conclusion The majority of children maintained their preoperative level of functional mobility at long-term follow-up after SEMLS.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
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(Accepted manuscript, 68.2KB, Terms of use)
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- Publisher copy:
- 10.1302/1863-2548.14.190148
Authors
- Publisher:
- British Editorial Society of Bone & Joint Surgery
- Journal:
- Journal of Children's Orthopaedics More from this journal
- Pages:
- 1-6
- Publication date:
- 2020-03-19
- Acceptance date:
- 2020-02-21
- DOI:
- EISSN:
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1863-2548
- ISSN:
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1863-2521
- Language:
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English
- Keywords:
- Pubs id:
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1100430
- Local pid:
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pubs:1100430
- Deposit date:
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2020-04-16
Terms of use
- Copyright holder:
- Tomos Aled Edwards et al.
- Copyright date:
- 2020
- Rights statement:
- Copyright © 2020, The author(s) Open Access This article is distributed under the terms of the Creative Commons Attribution-Non Commercial 4.0 International (CC BY-NC 4.0) licence (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed.
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