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Thesis

Sharing findings on sickle cell disorder in international collaborative biomedical research: an empirical ethics study in coastal Kenya

Abstract:

Against the background of a dilemma experienced by researchers during a genomics study at an established biomedical research centre in Kenya, the broad aims of this thesis are to develop appropriate responses to important ethical questions on sharing information on a common and serious genetic condition, sickle cell disorder, and assess the responsibilities of researchers in this regard. Using an empirical approach to normative reflection across two phases of qualitative research, I explore t...

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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Research group:
Ethox Centre
Oxford college:
Kellogg College
Role:
Author, Depositor

Contributors

Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Supervisor
Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Supervisor
Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Supervisor
Publication date:
2012
Type of award:
DPhil
Level of award:
Doctoral
Awarding institution:
University of Oxford
UUID:
uuid:b693b762-5ce8-4109-82ea-4cf7ba38675e
Local pid:
ora:6321

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