Journal article
Healthcare experiences and quality of life of adults with coeliac disease: a cross‐sectional study
- Abstract:
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Background Coeliac disease affects many aspects of quality of life and treatment can be burdensome. Access to healthcare services is necessary for the diagnosis and management of coeliac disease. The present study aimed to investigate the healthcare experiences of adults with coeliac disease and explore the relationship between experiences and quality of life.
Methods A cross‐sectional postal survey was sent to 800 members of Coeliac UK and contained questions about diagnosis, dietary advice, follow‐up appointments, prescriptions, knowledge and information provision, and quality of life [Coeliac Disease Assessment Questionnaire (CDAQ)]. Descriptive statistics were calculated. A total problem score summarised the number of problems experienced with healthcare services. Multiple linear regression analyses were conducted to investigate experiential and demographic factors associated with quality of life.
Results An average of 5.5 problems with healthcare services was reported, with females reporting significantly more problems than males (6.5 versus 5.0, P = 0.003). The total problem score was significantly related to the CDAQ overall index score and all CDAQ dimension scores (stigma, dietary burden, symptoms, social isolation, and worries and concerns) (P < 0.001). The analyses highlighted four key areas of healthcare experiences that were significantly related to quality of life: information provision, general practioners’ knowledge, communication with health professionals and access to prescriptions.
Conclusions Poorer experiences of healthcare services in coeliac disease are related to worse quality of life. Improving services in the four key areas identified may help adults with coeliac disease to achieve a better quality of life.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
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- Files:
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(Supplementary materials, docx, 7.1MB, Terms of use)
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(Supplementary materials, docx, 58.3KB, Terms of use)
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(Preview, Version of record, pdf, 188.2KB, Terms of use)
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- Publisher copy:
- 10.1111/jhn.12757
Authors
- Publisher:
- Wiley
- Journal:
- Journal of Human Nutrition and Dietetics More from this journal
- Volume:
- 33
- Issue:
- 6
- Pages:
- 741-751
- Publication date:
- 2020-05-07
- Acceptance date:
- 2020-03-19
- DOI:
- EISSN:
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1365-277X
- ISSN:
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0952-3871
- Language:
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English
- Keywords:
- Pubs id:
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1096503
- Local pid:
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pubs:1096503
- Deposit date:
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2020-03-25
- ARK identifier:
Terms of use
- Copyright holder:
- Crocker et al.
- Copyright date:
- 2020
- Rights statement:
- © 2020 The Authors. Journal of Human Nutrition and Dietetics published by John Wiley & Sons Ltd on behalf of British Dietetic Association This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
- Licence:
- CC Attribution (CC BY)
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