Ethics review of big data research: What should stay and what should be reformed?

Journal article

Introduction: The goal of BigMedilytics is, through the application of Artificial Intelligence (AI) technologies in combination with the analysis of Big Data, to transform Europe’s healthcare sector and enhance patient outcomes and productivity. The European Commission (EC) funded BigMedilytics as a lighthouse project to foster this disruptive innovation effort, i.e., BigMedilytics should have a certain signalling effect for future projects.One of the outcomes of BigMedilytics that stands out in comparison with similar Big Data Healthcare projects is the Interactive BigMedilytics Website. The Interactive BigMedilytics Website is a webpage that enables users to browse through a selection of aspects related to the BigMedilytics project. By navigating through the Interactive BigMedilyticsWebsite, you cannot only find information on results and different aspects of the 12 study projects that participated in the EU lighthouse project but also read about lessons learned grouped by topics, such as ethical, legal, and privacy issues or with respect to validation, technology, and business impact.[...

Authors: Ferretti, A; Ienca, M; Sheehan, M; Blasimme, A; Dove, ES

• Publication status: Published
• Peer review status: Peer reviewed
• Publisher: BioMed Central
• Journal: BMC Medical Ethics
• Volume: 22
• Issue: 1
• Pages: 51-51
• Article number: 51
• Publication date: 2021-04-30
• DOI: 10.1186/s12910-021-00616-4
• EISSN: 1472-6939
• ISSN: 1472-6939
• Language: English
• Keywords: Medicine; Data quality; Data mining; Political science; Mechanism (biology); Sociology; Social psychology; Public relations; Epistemology; Alternative medicine; Strengths and weaknesses; Research ethics; Scope (computer science); Business; Corporate governance; Data governance; Big data; Engineering ethics; Computer science; Context (archaeology); Data science; Philosophy of medicine; Engineering; Psychology