Journal article
Perspectives of informal caregivers who support people following hip fracture surgery: a qualitative study embedded within the HIP HELPER feasibility trial
- Abstract:
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Objectives This study aims to illuminate the perspectives of informal caregivers who support people following hip fracture surgery.
Design A qualitative study embedded within a now completed multicentre, feasibility randomised controlled trial (HIP HELPER).
Setting Five English National Health Service hospitals.
Participants We interviewed 20 participants (10 informal caregivers and 10 people with hip fracture), following hip fracture surgery. This included one male and nine females who experienced a hip fracture; and seven male and three female informal caregivers. The median age was 72.5 years (range: 65–96 years), 71.0 years (range: 43–81 years) for people with hip fracture and informal caregivers, respectively.
Methods Semistructured, virtual interviews were undertaken between November 2021 and March 2022, with caregiver dyads (person with hip fracture and their informal caregiver). Data were analysed thematically.
Findings We identified two main themes: expectations of the informal caregiver role and reality of being an informal caregiver; and subthemes: expectations of care and services; responsibility and advocacy; profile of people with hip fracture; decision to be a caregiver; transition from hospital to home.
Conclusion Findings suggest informal caregivers do not feel empowered to advocate for a person’s recovery or navigate the care system, leading to increased and unnecessary stress, anxiety and frustration when supporting the person with hip fracture. We suggest that a tailored information giving on the recovery pathway, which is responsive to the caregiving population (ie, considering the needs of male, younger and more active informal caregivers and people with hip fracture) would smooth the transition from hospital to home.
Trial registration number ISRCTN13270387.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
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(Preview, Version of record, pdf, 584.8KB, Terms of use)
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- Publisher copy:
- 10.1136/bmjopen-2023-074095
Authors
+ National Institute for Health Research
More from this funder
- Funder identifier:
- https://ror.org/0187kwz08
- Grant:
- NIHR200217
- Publisher:
- BMJ Publishing Group
- Journal:
- BMJ Open More from this journal
- Volume:
- 13
- Issue:
- 11
- Article number:
- e074095
- Place of publication:
- England
- Publication date:
- 2023-11-17
- Acceptance date:
- 2023-09-28
- DOI:
- EISSN:
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2044-6055
- Pmid:
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37977867
- Language:
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English
- Pubs id:
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1570854
- Local pid:
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pubs:1570854
- Deposit date:
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2025-04-03
- ARK identifier:
Terms of use
- Copyright holder:
- Welsh et al
- Copyright date:
- 2023
- Rights statement:
- © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made.
- Licence:
- CC Attribution (CC BY)
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