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"People power" or "pester power"? YouTube as a forum for the generation of evidence and patient advocacy

Abstract:

Objective: Venoplasty has been proposed, alongside the theory of chronic cerebrospinal venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns about its efficacy and safety, thousands of patients have undergone the procedure. This paper analyses YouTube videos where patients have shared their treatment experiences. Methods: Content analysis on the 100 most viewed videos from over 4000 identified in a search for 'CCSVI', and qualitative thematic analysis on p...

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Publisher copy:
10.1016/j.pec.2013.06.006

Authors


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Institution:
University of Oxford
Division:
MSD
Department:
Primary Care Health Sciences
Role:
Author
Journal:
Patient Education and Counseling More from this journal
Volume:
93
Issue:
3
Pages:
420-425
Publication date:
2013-12-01
DOI:
EISSN:
1873-5134
ISSN:
0738-3991
Language:
English
Keywords:
Pubs id:
pubs:443014
UUID:
uuid:ecd5c778-75a4-4dd2-9a44-b47079ad28c3
Local pid:
pubs:443014
Source identifiers:
443014
Deposit date:
2014-02-10

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