Journal article

How should decision aids be used during counseling to help patients who are "genetically at risk"?

Abstract:: People with genetic predispositions to disease are faced with uncertainty about whether, when, and to what extent an illness will actually develop. This prognostic uncertainty, combined with knowledge that preventative interventions (eg, risk-reducing surgeries for familial cancer syndromes) could significantly affect people's lives, renders prevention decisions especially challenging. This article illuminates ethical questions about the use of decision aids for people with genetic predispositions and calls for approaching individual decisions in light of ongoing communication and reflection about a person's life goals and values.

Publication status:: Published

Peer review status:: Peer reviewed

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APA Style

Evans, N., Metselaar, S., van El, C., Hallowell, N., & Widdershoven, G. (2019). How should decision aids be used during counseling to help patients who are "genetically at risk"? AMA Journal of Ethics, 21(10), E865–872.

MLA Style

Evans, N., et al. “How Should Decision Aids Be Used during Counseling to Help Patients Who Are ‘Genetically at Risk’?” AMA Journal of Ethics, vol. 21, no. 10, American Medical Association, 2019, pp. E865–872.

Chicago Style

Evans, N, S Metselaar, C van El, N Hallowell, and G Widdershoven. 2019. “How Should Decision Aids Be Used during Counseling to Help Patients Who Are ‘Genetically at Risk’?” AMA Journal of Ethics 21 (10): E865–872.
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Files:: msoc1-1910_1.pdf

(Preview, Version of record, pdf, 74.2KB, Terms of use)

Publisher copy:: 10.1001/amajethics.2019.865

Authors

+ Evans, N More by this author

Role:: Author

+ Metselaar, S More by this author

Role:: Author

+ van El, C More by this author

Role:: Author

+ Hallowell, N More by this author

Institution:: University of Oxford
Division:: MSD
Department:: Nuffield Department of Population Health
Sub department:: Population Health
Role:: Author

+ Widdershoven, G More by this author

Role:: Author

+ Wellcome Trust More from this funder

Grant:: 203132/Z/16/Z

Publisher:: American Medical Association
Journal:: AMA Journal of Ethics More from this journal
Volume:: 21
Issue:: 10
Pages:: E865-872
Publication date:: 2019-10-01
Acceptance date:: 2019-10-03
DOI:: 10.1001/amajethics.2019.865
ISSN:: 2376-6980

Keywords:: FFR
Pubs id:: pubs:1063454
UUID:: uuid:e219be36-7c85-41f7-a7ed-712a639c3c99
Local pid:: pubs:1063454
Source identifiers:: 1063454
Deposit date:: 2019-10-21

Terms of use

Copyright date:: 2019
Notes:: Copyright 2019 American Medical Association. All rights reserved.

Licence:: Terms and Conditions of Use for Oxford University Research Archive

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