Journal article
Redefining palliative care: A new consensus-based definition
- Abstract:
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Background:
The International Association for Hospice and Palliative Care (IAHPC) developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief.
Aim:
The objective of this paper is to present the research behind the new definition.
Methods:
The three-phased consensus process involved health care workers from countries in all income levels. In phase one, 38 PC experts evaluated the components of the World Health Organization (WHO) definition and suggested new/revised ones. In phase two, 412 IAHPC members in 88 countries expressed their level of agreement with the suggested components. In phase three, using results from phase two, the expert panel developed the definition.
Results:
The consensus-based definition is “Palliative care is the active holistic care of individuals across all ages with serious health-related suffering due to severe illness and especially of those near the end of life. It aims to improve the quality of life of patients, their families and their caregivers.” The definition includes a number of bullet points with additional details as well as recommendations for governments to reduce barriers to palliative care.
Conclusions:
Participants had significantly different perceptions and interpretations of PC. The greatest challenge faced by the core group was trying to find a middle ground between those who think that PC is the relief of all suffering, and those who believe that PC describes the care of those with a very limited remaining life span.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
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(Preview, Version of record, pdf, 532.2KB, Terms of use)
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- Publisher copy:
- 10.1016/j.jpainsymman.2020.04.027
Authors
- Publisher:
- Elsevier
- Journal:
- Journal of Pain and Symptom Management More from this journal
- Volume:
- 60
- Issue:
- 4
- Pages:
- 754-764
- Publication date:
- 2020-05-06
- Acceptance date:
- 2020-04-24
- DOI:
- EISSN:
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1873-6513
- ISSN:
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0885-3924
- Language:
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English
- Keywords:
- Pubs id:
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1103685
- Local pid:
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pubs:1103685
- Deposit date:
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2020-05-09
- ARK identifier:
Terms of use
- Copyright holder:
- Elsevier
- Copyright date:
- 2020
- Rights statement:
- © 2020 Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine. This paper is available under a Creative Commons licence.
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