Journal article
Identifiability, genomics and UK Data Protection Law
- Abstract:
- Analyses of individuals' genomes - their entire DNA sequence - have increased knowledge about the links between genetics and disease. Anticipated advances in 'next generation' DNA-sequencing techniques will see the routine research use of whole genomes, rather than distinct parts, within the next few years. The scientific benefits of genomic research are, however, accompanied by legal and ethical concerns. Despite the assumption that genetic research data can and will be rendered anonymous, participants' identities can sometimes be elucidated, which could cause data protection legislation to apply. We undertake a timely reappraisal of these laws - particularly new penalties - and identifiability in genomic research.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
Actions
Authors
+ Economic and Social Research Council
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- Funding agency for:
- Gowans, H
- Grant:
- RES-232-25-004
+ Engineering and Physical Sciences Research Council
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- Funding agency for:
- Curren, L
- Kanellopoulou, N
- Grant:
- EP/G002541/1
- EP/G002541/1
+ European Union FP6 Procardis project
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- Funding agency for:
- Boddington, P
- Grant:
- LSHM-CT-2007-037273
- Publisher:
- Martinus Nijhoff Publishers
- Journal:
- European Journal of Health Law More from this journal
- Volume:
- 17
- Issue:
- 4
- Pages:
- 329-344
- Publication date:
- 2010-01-01
- DOI:
- EISSN:
-
1571-8093
- ISSN:
-
0929-0273
- Language:
-
English
- Keywords:
- Subjects:
- UUID:
-
uuid:b81794be-f7d9-4cdd-b641-81d72a0c4fce
- Local pid:
-
ora:4851
- Deposit date:
-
2011-01-27
Terms of use
- Copyright holder:
- Koninklijke Brill NV, Leiden
- Copyright date:
- 2010
- Notes:
- The full-text of this article is not available in ORA, but you may be able to access the article via the publisher copy link on this record page.
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