The People’s Review protocol: planning an innovative study powered by the public

Journal article : Review

Background: Systematic reviews provide the best quality evidence about the effectiveness of health treatments. However, systematic reviews and the important role they play in healthcare are not well understood beyond the walls of academia and healthcare. Systematic reviews can help the public make more informed health choices, based on the best available evidence. The People’s Review aims to provide an opportunity to members of the public to plan and complete a full systematic review online in a supportive and engaging manner. It will be a learning-by-doing experience to support the public’s understanding of what reviews are, how they are done, why they matter, and how they can be used to support everyday health decisions. Methods: In The People’s Review the public will conduct a full systematic review, deciding the review question, planning the review, working on the parts of the review, and deciding how to share the review findings, in a ‘learning by doing’ process. The review will be conducted online in eight stages using Cochrane Crowd, an existing citizen science platform. The team working behind-the-scenes of The People’s Review will design, produce, and share learning material to support the public’s understanding at each stage of the review. Discussion: Involving the public in a systematic review online will enable members of the public to understand and use systematic reviews in everyday health choices. It provides the public with a unique ‘learning by doing’ opportunity to get to grips with what systematic reviews are and how they are produced. This article describes how we plan to involve the public in The People’s Review. It is not a protocol for the systematic review itself – this will be published separately once the project has commenced, and the public have decided the review question.

Authors: Quinn, É; Dawson, S; Holt, J; Hossain, S; Logullo, P

• Publication status: Published
• Peer review status: Peer reviewed
• Publisher: BioMed Central
• Journal: Research Involvement and Engagement
• Volume: 11
• Issue: 1
• Article number: 28
• Publication date: 2025-03-25
• Acceptance date: 2025-01-24
• DOI: 10.1186/s40900-025-00682-7
• EISSN: 2056-7529
• Language: English
• Keywords: Citizen science; Making sense of science; Evidence-based healthcare; Systematic review; Patient and public involvement (PPI); learning by doing; Public partners; Evidence synthesis; Health research
• Subtype: Review