- Abstract:
-
Background
Early engagement in advance care planning (ACP) is seen as fundamental for ensuring the highest standard of care for children and young people with a life-limiting condition (LLC). However, most families have little knowledge or experience of ACP.
Objective
To investigate how parents of children and young people with LLCs approach and experience ACP.
Methods
Open-ended, semi-structured interviews were conducted with parents of 18 childre...
Expand abstract - Publication status:
- Published
- Peer review status:
- Peer reviewed
- Version:
- Publisher's version
- Files:
-
-
(pdf, 485.1KB)
-
- Publisher copy:
- 10.1111/hex.12500
-
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- Publisher:
- Wiley Publisher's website
- Journal:
- Health Expectations Journal website
- Volume:
- 20
- Issue:
- 4
- Pages:
- 675-684
- Publication date:
- 2016-09-05
- Acceptance date:
- 2016-08-27
- DOI:
- EISSN:
-
1369-7625
- ISSN:
-
1369-6513
- Pubs id:
-
pubs:648209
- URN:
-
uri:b0c9b2f6-74b0-4fb5-8d74-3dfd748e42a3
- UUID:
-
uuid:b0c9b2f6-74b0-4fb5-8d74-3dfd748e42a3
- Local pid:
- pubs:648209
- Language:
- English
- Keywords:
- Copyright holder:
- Crocker et al
- Copyright date:
- 2016
- Notes:
- © 2016 The Authors Health Expectations Published by John Wiley and Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Journal article
Keeping all options open: Parents' approaches to advance care planning.
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Funding
National Institute for Health Research
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