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Journal article

Keeping all options open: Parents' approaches to advance care planning.

Abstract:

Background

Early engagement in advance care planning (ACP) is seen as fundamental for ensuring the highest standard of care for children and young people with a life-limiting condition (LLC). However, most families have little knowledge or experience of ACP.

Objective

To investigate how parents of children and young people with LLCs approach and experience ACP.

Methods

Open-ended, semi-structured interviews were conducted with parents of 18 childre...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Publisher's version

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Publisher copy:
10.1111/hex.12500

Authors


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Institution:
University of Oxford
Division:
Medical Sciences Division
Department:
Primary Care; Primary Care Health Sciences
Oxford college:
Green Templeton College
Role:
Author
ORCID:
0000-0002-8223-0349
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National Institute for Health Research More from this funder
Publisher:
Wiley Publisher's website
Journal:
Health Expectations Journal website
Volume:
20
Issue:
4
Pages:
675-684
Publication date:
2016-09-05
Acceptance date:
2016-08-27
DOI:
EISSN:
1369-7625
ISSN:
1369-6513
Pubs id:
pubs:648209
URN:
uri:b0c9b2f6-74b0-4fb5-8d74-3dfd748e42a3
UUID:
uuid:b0c9b2f6-74b0-4fb5-8d74-3dfd748e42a3
Local pid:
pubs:648209

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