- Abstract:
-
Genome‐wide sequencing may generate secondary findings (SFs). It is recommended that validated, clinically actionable SFs are reported back to patients/research participants. To explore publics’ perspectives on the best ways to do this, we performed a vignette study among Finnish adults. Our aim was to explore how lay people react to different types of hypothetical genomic SFs. Participants received a hypothetical letter revealing a SF predisposing to a severe but actionable disease—cardiovas...
Expand abstract - Publication status:
- Published
- Peer review status:
- Peer reviewed
- Version:
- Accepted Manuscript
- Files:
-
-
(pdf, 210.7kb)
-
- Publisher copy:
- 10.1007/s10897-018-0288-7
-
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- Publisher:
- Springer Verlag Publisher's website
- Journal:
- Journal of Genetic Counseling Journal website
- Volume:
- 28
- Issue:
- 2
- Pages:
- 343-354
- Publication date:
- 2018-12-14
- Acceptance date:
- 2018-08-02
- DOI:
- EISSN:
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1573-3599
- ISSN:
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1059-7700
- Pubs id:
-
pubs:908819
- URN:
-
uri:a9651212-85f2-4d19-9c17-c53f1a023b92
- UUID:
-
uuid:a9651212-85f2-4d19-9c17-c53f1a023b92
- Local pid:
- pubs:908819
- Copyright holder:
- National Society of Genetic Counselors
- Copyright date:
- 2018
- Notes:
-
Copyright © National Society of Genetic Counselors, Inc. 2018. This is the accepted manuscript version of the article. The final version is available online from Wiley at: https://doi.org/10.1007/s10897-018-0288-7
Journal article
Lay perspectives on receiving different types of genomic secondary findings: a qualitative vignette study
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