Journal article
Prevalence and demographics of 331 rare diseases and associated COVID-19-related mortality among 58 million individuals: a nationwide retrospective observational study
- Abstract:
-
Background
The Global Burden of Disease Study has provided key evidence to inform clinicians, researchers, and policy makers across common diseases, but no similar effort with a single-study design exists for hundreds of rare diseases. Consequently, for many rare conditions there is little population-level evidence, including prevalence and clinical vulnerability, resulting in an absence of evidence-based care that was prominent during the COVID-19 pandemic. We aimed to in... Expand abstract
- Publication status:
- Published
- Peer review status:
- Peer reviewed
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(Preview, Version of record, pdf, 779.8KB, Terms of use)
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(Preview, Supplementary materials, pdf, 7.4MB, Terms of use)
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- Publisher copy:
- 10.1016/s2589-7500(24)00253-x
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- Funder identifier:
- https://ror.org/02wdwnk04
- Grant:
- HDRUK2023.0234
- Publisher:
- Elsevier
- Journal:
- Lancet Digital Health More from this journal
- Volume:
- 7
- Issue:
- 2
- Pages:
- e145-e156
- Publication date:
- 2025-01-29
- Acceptance date:
- 2024-11-13
- DOI:
- EISSN:
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2589-7500
- Pmid:
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39890245
- Language:
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English
- Pubs id:
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2082966
- Local pid:
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pubs:2082966
- Deposit date:
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2025-02-06
Terms of use
- Copyright holder:
- Thygesen et al
- Copyright date:
- 2025
- Rights statement:
- © 2025 The Author(s). Published by Elsevier Ltd. This is an Open Access article under the CC BY 4.0 license.
- Licence:
- CC Attribution (CC BY)
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