Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views

Conference item

Objectives: To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure. Design: Qualitative semi-structured interview study, analysed using a framework approach Participants and Setting: Interviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England. Results: There was broad support for a single PROM that could be used to measure outcomes for patients with any LTCs in any health or social care setting. Interviewees identified three desired uses for a PROM: to improve the quality of individual care; to increase people’s engagement in their own care; and to monitor the performance of services. Interviewees felt that a PROM for LTCs should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment, and social participation, and be co-designed with patients and professional end-users. Stakeholders emphasised the need for a PROM to be feasible for practical implementation at the individual clinical level as a first priority. A number of concerns and potential problems were identified in relation to the application and interpretation of an LTC PROM. Conclusions: This study has demonstrated support for a single self-report outcome measure that reflects the priorities of people with LTCs, if such a measure can be shown to be meaningful and useful at the individual level. People with LTCs and professional end-users in health and social care should be involved in the development and evaluation of such a measure.

Authors: Gibbons, EJ; Jenkinson, C; Fitzpatrick, R; Peters, M

• Publication status: Published
• Peer review status: Peer reviewed
• Publisher: Springer
• Host title: Quality of Life Research
• Journal: Quality of Life Research
• Volume: 23
• Issue: Supplement 1
• Pages: 96-96
• Publication date: 2017-09-14
• Acceptance date: 2017-03-29
• DOI: 10.1007/s11136-014-0769-6
• EISSN: 1573-2649
• ISSN: 0962-9343
• Keywords: SBTMR