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Journal article

Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes

Abstract:
The systemic vasculitides are a group of multisystem diseases, which can be life and organ threatening. High-dose immunosuppressants are required to control inflammation in vital organs, such as the kidneys, lungs, skin, joints, and eyes. Patients report a range of impacts on their health-related quality of life due to symptoms, irreversible damage, and the adverse effects of medications. The measurement of patient perspectives within clinical studies in vasculitis is essential to capture outcomes of greatest importance to patients. Validated generic, disease-specific and symptom-specific patient-reported outcomes available for use in patients with systemic vasculitis are reviewed here.
Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.2147/PROM.S163601

Authors


More by this author
Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author


Publisher:
Dove Press
Journal:
Patient Related Outcome Measures More from this journal
Volume:
10
Pages:
37-42
Publication date:
2019-02-08
Acceptance date:
2018-10-26
DOI:
ISSN:
1179-271X
Pmid:
30804691


Language:
English
Keywords:
Pubs id:
pubs:980528
UUID:
uuid:9e5cda5a-bb22-4dcf-8a4a-6b30ada44936
Local pid:
pubs:980528
Source identifiers:
980528
Deposit date:
2019-04-24

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