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Knowing who to trust: exploring the role of ‘ethical metadata’ in mediating risk of harm in collaborative genomics research in Africa

Abstract:

Background: The practice of making datasets publicly available for use by the wider scientific community has become firmly integrated in genomic science. One significant gap in literature around data sharing concerns how it impacts on scientists’ ability to preserve values and ethical standards that form an essential component of scientific collaborations. We conducted a qualitative sociological study examining the potential for harm to ethnic groups, a...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1186/1472-6939-15-62

Authors


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Institution:
University of Oxford
Department:
Oxford, MSD, NDM, WTC Human Genetics
Role:
Author
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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author
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Publisher:
BioMed Central Publisher's website
Journal:
BMC Medical Ethics Journal website
Volume:
15
Article number:
62
Publication date:
2014-08-13
Acceptance date:
2014-07-22
DOI:
EISSN:
1472-6939
Source identifiers:
484438
Language:
English
Keywords:
UUID:
uuid:889a364d-fee0-4a64-a409-d6bfa62930b1
Local pid:
pubs:484438
Deposit date:
2014-09-18

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