Journal article
Knowing who to trust: exploring the role of ‘ethical metadata’ in mediating risk of harm in collaborative genomics research in Africa
- Abstract:
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Background: The practice of making datasets publicly available for use by the wider scientific community has become firmly integrated in genomic science. One significant gap in literature around data sharing concerns how it impacts on scientists’ ability to preserve values and ethical standards that form an essential component of scientific collaborations. We conducted a qualitative sociological study examining the potential for harm to ethnic groups, a...
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- Publication status:
- Published
- Peer review status:
- Peer reviewed
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(Version of record, pdf, 314.4KB)
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- Publisher copy:
- 10.1186/1472-6939-15-62
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Authors
Bibliographic Details
- Publisher:
- BioMed Central Publisher's website
- Journal:
- BMC Medical Ethics Journal website
- Volume:
- 15
- Article number:
- 62
- Publication date:
- 2014-08-13
- Acceptance date:
- 2014-07-22
- DOI:
- EISSN:
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1472-6939
- Source identifiers:
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484438
Item Description
- Language:
- English
- Keywords:
- UUID:
-
uuid:889a364d-fee0-4a64-a409-d6bfa62930b1
- Local pid:
- pubs:484438
- Deposit date:
- 2014-09-18
Terms of use
- Copyright holder:
- de Vries et al
- Copyright date:
- 2014
- Notes:
- © 2014 de Vries et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
- Licence:
- CC Attribution (CC BY)
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