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Journal article

The RUDY Study: Using digital technologies to enable a research partnership

Abstract:

Patients have extensive experience of their disease that can enhance the design and execution of research leading to significant innovations and efficiencies in the research process. The research community on the whole have been slow to adopt practices that enable patients to become active partners in research. Digital technologies are providing the means to do this more easily and so are increasingly being used to interact with patients and involve them in the design and execution of resear...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Publisher's version

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Publisher copy:
10.1038/ejhg.2017.57

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Department:
Oxford, MSD, Nuffield Department of Population Health, Population Health
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Department:
Oxford, MSD, NDORMS
More by this author
Department:
Oxford, MSD, Nuffield Department of Population Health
More by this author
Department:
Oxford, MSD, NDORMS
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National Institute for Health Research More from this funder
Publisher:
Nature Publishing Group Publisher's website
Journal:
European Journal of Human Genetics Journal website
Volume:
25
Pages:
816–822
Publication date:
2017-04-05
Acceptance date:
2017-02-17
DOI:
EISSN:
1476-5438
ISSN:
1018-4813
Pubs id:
pubs:685234
URN:
uri:86be03da-5439-4736-8e82-bf4971a1418e
UUID:
uuid:86be03da-5439-4736-8e82-bf4971a1418e
Local pid:
pubs:685234

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