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Journal article : Review

A call for citizen science in pandemic preparedness and response: beyond data collection

Abstract:
The COVID-19 pandemic has underlined the need to partner with the community in pandemic preparedness and response in order to enable trust-building among stakeholders, which is key in pandemic management. Citizen science, defined here as a practice of public participation and collaboration in all aspects of scientific research to increase knowledge and build trust with governments and researchers, is a crucial approach to promoting community engagement. By harnessing the potential of digitally enabled citizen science, one could translate data into accessible, comprehensible and actionable outputs at the population level. The application of citizen science in health has grown over the years, but most of these approaches remain at the level of participatory data collection. This narrative review examines citizen science approaches in participatory data generation, modelling and visualisation, and calls for truly participatory and co-creation approaches across all domains of pandemic preparedness and response. Further research is needed to identify approaches that optimally generate short-term and long-term value for communities participating in population health. Feasible, sustainable and contextualised citizen science approaches that meaningfully engage affected communities for the long-term will need to be inclusive of all populations and their cultures, comprehensive of all domains, digitally enabled and viewed as a key component to allow trust-building among the stakeholders. The impact of COVID-19 on people's lives has created an opportune time to advance people's agency in science, particularly in pandemic preparedness and response.
Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1136/bmjgh-2022-009389

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Role:
Author
ORCID:
0000-0002-0340-5252
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Role:
Author
ORCID:
0000-0003-0914-3529


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Funder identifier:
https://ror.org/033ztm745


Publisher:
BMJ Publishing Group
Journal:
BMJ Global Health More from this journal
Volume:
7
Issue:
6
Article number:
e009389
Place of publication:
England
Publication date:
2022-06-27
Acceptance date:
2022-06-10
DOI:
EISSN:
2059-7908
Pmid:
35760438


Language:
English
Keywords:
Subtype:
Review
Pubs id:
1266460
Local pid:
pubs:1266460
Deposit date:
2025-02-20
ARK identifier:

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