Journal article
The development of a written resource for parents facing end-of-life decisions
- Abstract:
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Background:
Written resources in adult intensive care have been shown to benefit families facing end of life (EoL) decisions. There are few resources for parents making EoL decisions for their child and no existing resources addressing ethical issues. TheCaring Decisionshandbook and website were developed to fill these gaps.
Aim:
We discuss the development of the resources, modification after reviewer feedback and findings from initial pilot implementation.
Design:
A targeted literature review-to identify resources and factors that impact on parental EoL decisionmaking; development phase-guided by the literature and the researchers’ expertise; consultation processcomprised a multi-disciplinary panel of experts and parents; pilot evaluation study-hard-copy handbook was distributed as part of routine care at an Australian Children’s Hospital.
Setting/Participants:
Twelve experts and parents formed the consultation panel. Eight parents of children with life-limiting conditions and clinicians were interviewed in the pilot study.
Results:
Numerous factors supporting/impeding EoL decisions were identified. Caring Decisions addressed issues identified in the literature and by the multidisciplinary research team. The consultation panel provided overwhelmingly positive feedback. Pilot study parents found the resources helpful and comforting. Most clinicians viewed the resources as very beneficial to parents and identified them as ideal for training purposes.
Conclusions
The development of the resources addressed many of the gaps in existing resources. The consultation process and the pilot study suggest these resources could be of significant benefit to parents and clinicians.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
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- Files:
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(Preview, Version of record, pdf, 133.2KB, Terms of use)
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- Publisher copy:
- 10.1089/jpm.2015.0048
Authors
- Publisher:
- Mary Ann Liebert
- Journal:
- Journal of Palliative Medicine More from this journal
- Volume:
- 18
- Issue:
- 11
- Pages:
- 945-955
- Publication date:
- 2015-11-01
- DOI:
- EISSN:
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1557-7740
- ISSN:
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1096-6218
- Pubs id:
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pubs:568840
- UUID:
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uuid:6aab008a-1769-4227-9dac-87d9905df32e
- Local pid:
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pubs:568840
- Source identifiers:
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568840
- Deposit date:
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2016-01-12
- ARK identifier:
Terms of use
- Copyright holder:
- Xafis et al
- Copyright date:
- 2015
- Notes:
- © Vicki Xafis, Lynn Gillam, Jenny Hynson, Jane Sullivan, Mary Cossich, Dominic Wilkinson 2015; Published by Mary Ann Liebert, Inc. This Open Access article is distributed under the terms of the Creative Commons Attribution Noncommercial License (http://creativecommons.org/licenses/by-nc/4.0/) which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited.
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