Equitable partnership: patient and public involvement and engagement and community engagement in mental health research in Pakistan

Journal article

Background & aim: Patient and public involvement and engagement (PPIE), alongside community engagement, are crucial in mental health research to ensure relevance and impact. This study, part of the Medical Research Council (MRC) UK-funded, Traditional HEalers working with primary care and mental Health for early intervention in Psychosis in young pErsons (THE HOPE) project, describes the implementation of PPIE and community engagement in THE HOPE project and their impact on the project and community. Methods: A six members advisory group, including individuals with lived experience of psychosis, caregivers, and a TSH, contributed to the study design, topic guides, and community engagement initiatives. Thirty-four community engagement sessions were conducted in four phases, utilizing sermons, posters, pamphlets, and direct outreach. Results & conclusion: The thematic analysis highlighted key issues like medication adherence, service delivery, and the role of traditional healers and primary care. Insights from the advisory group informed recommendations for shared decision-making and capacity-building, emphasizing the importance of inclusive, culturally relevant, and collaborative approaches in mental health research.

Authors: Hamid, S; Jamal, SF; Shah, SMU; Azeemi, IT; Khan, AJ

• Publication status: Published
• Peer review status: Peer reviewed
• Publisher: BioMed Central
• Journal: Research Involvement and Engagement
• Volume: 12
• Issue: 1
• Article number: 97
• Publication date: 2026-06-19
• Acceptance date: 2026-04-22
• DOI: 10.1186/s40900-026-00893-6
• EISSN: 2056-7529
• ISSN: 2056-7529
• Language: English
• Keywords: PPIE; Early intervention; Traditional healers; Psychosis; Mental health research; Community engagement; Primary care; LMICs