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Journal article

How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study

Abstract:

Genetic test results can be relevant to patients and their relatives. Questions thus arise around whether clinicians regard genetic information as confidential to individuals or to families, and about how they broach this and other issues, including the potential for incidental findings, in consent (forms) for genetic testing. We conducted a content analysis of UK-wide genetic testing consent forms and interviewed 128 clinicians/laboratory scientists. We found that almost all genetic services...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Publisher's version

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Publisher copy:
10.1007/s10689-017-9994-9

Authors


Dheensa, S More by this author
Crawford, G More by this author
More by this author
Department:
St Cross College
Fenwick, A More by this author
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Publisher:
Springer Netherlands Publisher's website
Journal:
Familial Cancer Journal website
Volume:
17
Issue:
1
Pages:
155–166
Publication date:
2017-04-12
Acceptance date:
2017
DOI:
EISSN:
1573-7292
ISSN:
1389-9600
Pubs id:
pubs:689725
URN:
uri:616f30d2-ce6a-4a03-882b-8d5189180ead
UUID:
uuid:616f30d2-ce6a-4a03-882b-8d5189180ead
Local pid:
pubs:689725
Language:
English
Keywords:

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