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How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study

Abstract:

Genetic test results can be relevant to patients and their relatives. Questions thus arise around whether clinicians regard genetic information as confidential to individuals or to families, and about how they broach this and other issues, including the potential for incidental findings, in consent (forms) for genetic testing. We conducted a content analysis of UK-wide genetic testing consent forms and interviewed 128 clinicians/laboratory scientists. We found that almost all genetic services...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1007/s10689-017-9994-9

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Institution:
University of Oxford
Oxford college:
St Cross College
Role:
Author
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Publisher:
Springer Netherlands Publisher's website
Journal:
Familial Cancer Journal website
Volume:
17
Issue:
1
Pages:
155–166
Publication date:
2017-04-12
Acceptance date:
2017-01-01
DOI:
EISSN:
1573-7292
ISSN:
1389-9600
Source identifiers:
689725
Language:
English
Keywords:
Pubs id:
pubs:689725
UUID:
uuid:616f30d2-ce6a-4a03-882b-8d5189180ead
Local pid:
pubs:689725
Deposit date:
2017-07-04

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