Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam

Journal article

International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context.

Authors: Merson, L; Phong, T; Nhan, L; Dung, N; Ngan, T

• Publication status: Published
• Peer review status: Peer reviewed
• Publisher: SAGE Publications
• Journal: Journal of Empirical Research on Human Research Ethics
• Volume: 10
• Issue: 3
• Pages: 251-263
• Publication date: 2015-08-21
• DOI: 10.1177/1556264615592387
• ISSN: 1556-2654 and 1556-2646
• Pmid: 26297747
• Language: English
• Keywords: trust; qualitative research; attitude; information dissemination; culture; humans; Vietnam; focus groups; income; developing countries; data collection; research subjects; SBTMR; policy; biomedical research; research personnel; residence characteristics; cooperative behavior