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Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya

Abstract:

Background: The potential contribution of community engagement to addressing ethical challenges for international biomedical research is well described, but there is relatively little documented experience of community engagement to inform its development in practice. This paper draws on experiences around community engagement and informed consent during a genetic cohort study in Kenya to contribute to understanding the strengths and challenges of commu...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Publisher's version

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Publisher copy:
10.1186/1472-6939-11-13

Authors


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Institution:
University of Oxford
Department:
Oxford, MSD, NDM
Role:
Author
More by this author
Institution:
University of Oxford
Department:
Oxford, MSD, NDM
Role:
Author
More by this author
Institution:
University of Oxford
Department:
Oxford, MSD, NDM, Tropical Medicine
Role:
Author
More by this author
Institution:
University of Oxford
Department:
Oxford, MSD, NDM
Role:
Author
Publisher:
BioMed Central Publisher's website
Journal:
BMC Medical Ethics Journal website
Volume:
11
Pages:
Article: 13
Publication date:
2010-07-15
Acceptance date:
2010-07-15
DOI:
EISSN:
1472-6939
URN:
uuid:32da95eb-d320-4fbf-91ab-918de0a8c477
Source identifiers:
93337
Local pid:
pubs:93337

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