Journal article
What treatment outcomes matter most? A Q-study of outcome priority profiles among youth with lived experience of depression
- Abstract:
- Interest in youth perspectives on what constitutes an important outcome in the treatment of depression has been growing, but limited attention has been given to heterogeneity in outcome priorities, and minority viewpoints. These are important to consider for person-centred outcome tracking in clinical practice, or when conducting clinical trials targeting specific populations. This study used Q-methodology to identify outcome priority profiles among youth with lived experience of service use for depression. A purposive sample of 28 youth (aged 16-21 years) rank-ordered 35 outcome statements by importance and completed brief semi-structured interviews eliciting their sorting rationales. By-person principal component analysis was used to identify outcome priority profiles based on all Q-sort configurations. Priority profiles were described and interpreted with reference to the qualitative interview data. Four distinct outcome priority profiles were identified: "Relieving distress and experiencing a happier emotional state"; "Learning to cope with cyclical distressing emotional states"; "Understanding and processing distressing emotional states"; and "Reduced interference of ongoing distressing emotional states with daily life". All four profiles prioritised improvements in mood and the ability to feel pleasure but differed in the level of importance assigned to learning coping skills, processing experiences, and the reduced interference of depression with life and identity. As part of a person-centered approach to care delivery, care providers should routinely engage young people in conversation and shared decision-making about the types of change they would like to prioritise and track during treatment, beyond a common core of consensus outcomes.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
Actions
Access Document
- Files:
-
-
(Preview, Version of record, pdf, 717.8KB, Terms of use)
-
- Publisher copy:
- 10.1007/s00787-021-01839-x
Authors
+ Centre for Addiction and Mental Health
More from this funder
- Funder identifier:
- https://ror.org/03e71c577
- Publisher:
- Springer Nature
- Journal:
- European Child and Adolescent Psychiatry More from this journal
- Volume:
- 32
- Issue:
- 1
- Pages:
- 123-137
- Place of publication:
- Germany
- Publication date:
- 2021-07-17
- Acceptance date:
- 2021-06-28
- DOI:
- EISSN:
-
1435-165X
- ISSN:
-
1018-8827
- Pmid:
-
34273026
- Language:
-
English
- Keywords:
- Pubs id:
-
1188667
- Local pid:
-
pubs:1188667
- Deposit date:
-
2025-01-09
- ARK identifier:
Terms of use
- Copyright holder:
- Krause et al
- Copyright date:
- 2021
- Rights statement:
- © The Author(s) 2021. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder.
- Licence:
- CC Attribution (CC BY)
If you are the owner of this record, you can report an update to it here: Report update to this record