Paediatric palliative care in the NICU: a new era of integration

Journal article

Abstract:: We are entering a new era of integration between neonatal medicine and paediatric palliative care, with increasing recognition that the role and skills of palliative care extend beyond care of only the terminally ill infant. This paper addresses the principles of paediatric palliative care and how they apply in the NICU, considers who provides palliative care in this setting and outlines the key components of care. We consider how the international standards of palliative care pertain to neonatal medicine and how a fully integrated approach to care may be realised across these two disciplines.
Palliative care is so much more than end-of-life care, offering a proactive and holistic approach which addresses the physical, emotional, spiritual and social needs of the infant and family. This is a truly interdisciplinary endeavour, relying on a harmonisation of the skills from both the neonatal and palliative care teams to deliver high-quality coordinated care.

Files:: Bertaud_et_al_2023_Paediatric_palliative_careAAM.pdf

(Preview, Accepted manuscript, pdf, 205.1KB, Terms of use)

Language:: English
Keywords:: neonatal intensive care unit

perinatal

neonatal

FFR

palliative care
Pubs id:: 1341445
Local pid:: pubs:1341445
Deposit date:: 2023-05-18
ARK identifier:: ark:/29072/ora_2bf11864ba58446a8031004010967008

Copyright holder:: Bertaud et al
Rights statement:: © 2023 The Authors. This research was funded in whole, or in part, by the Wellcome Trust [224744/Z/21/Z]. For the purpose of open access, the author(s) has applied a Creative Commons Attribution (CC BY) license to any Author Accepted Manuscript version arising from this submission.
Notes:: This is the accepted manuscript version of the article. The final version is available from Elsevier at: 10.1016/j.siny.2023.101436

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