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Journal article

Health information work and the enactment of care in couples and families affected by multiple sclerosis

Abstract:

Given the considerable emphasis placed on informed choice, the management of health information has become an increasingly important part of living with chronic illness. This paper explores the intra-familial dynamics of managing health information in the context of chronic illness. Drawing on 77 interviews with people affected by Multiple Sclerosis in the UK (patients, partners, family members and close friends), we show how families develop their own idiosyncratic information practices, inc...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1111/1467-9566.12842

Authors


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Institution:
University of Oxford
Division:
MSD
Department:
Primary Care Health Sciences
Role:
Author
ORCID:
0000-0002-1456-4857
Publisher:
Wiley Publisher's website
Journal:
Sociology of Health and Illness Journal website
Volume:
41
Issue:
2
Pages:
395-410
Publication date:
2019-01-24
Acceptance date:
2018-10-02
DOI:
EISSN:
1467-9566
ISSN:
0141-9889
Pmid:
30677163
Source identifiers:
969169
Language:
English
Keywords:
Pubs id:
pubs:969169
UUID:
uuid:168ef972-c7f7-4bf9-b9dc-3e475a28c3d5
Local pid:
pubs:969169
Deposit date:
2019-03-11

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