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Journal article : Abstract

Measuring patient- and carer-reported outcomes following genome sequencing for rare disease diagnosis: a psychometric assessment of outcome measurement instruments

Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1016/j.jval.2025.04.1364

Authors

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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Author
ORCID:
0000-0001-6331-0602
More by this author
Institution:
University of Oxford
Division:
MSD
Department:
Primary Care Health Sciences
Role:
Author
ORCID:
0000-0001-5285-409X
More by this author
Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author
ORCID:
0000-0002-0076-5981
More by this author
Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author


Publisher:
Elsevier
Journal:
Value in Health More from this journal
Volume:
28
Issue:
6
Pages:
s317
Article number:
PCR42
Publication date:
2025-07-11
Event title:
ISPOR 2021
Event location:
Online
Event start date:
2021-05-17
Event end date:
2021-05-20
DOI:
EISSN:
1524-4733
ISSN:
1098-3015


Language:
English
Keywords:
Subtype:
Abstract
Pubs id:
2247802
UUID:
uuid_0f6aea07-6b05-48bc-830b-5818ba19201f
Local pid:
pubs:2247802
Deposit date:
2026-02-06
ARK identifier:

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