Journal article
From patients to partners: Participant-centric initiatives in biomedical research
- Abstract:
-
Advances in computing technology and bioinformatics mean that medical research is increasingly characterized by large international consortia of researchers that are reliant on large data sets and biobanks. These trends raise a number of challenges for obtaining consent, protecting participant privacy concerns and maintaining public trust. Participant-centred initiatives (PCIs) use social media technologies to address these immediate concerns, but they also provide the basis for long-term int...
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- Publisher copy:
- 10.1038/nrg3218
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Bibliographic Details
- Journal:
- Nature Reviews Genetics
- Volume:
- 13
- Issue:
- 5
- Pages:
- 371-376
- Publication date:
- 2012-05-01
- DOI:
- EISSN:
-
1471-0064
- ISSN:
-
1471-0056
- Source identifiers:
-
325910
Item Description
- Language:
- English
- Pubs id:
-
pubs:325910
- UUID:
-
uuid:0d1322f1-efcb-41cc-a85a-71fe3623cca4
- Local pid:
- pubs:325910
- Deposit date:
- 2013-11-16
Terms of use
- Copyright date:
- 2012
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