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Journal article

From patients to partners: Participant-centric initiatives in biomedical research

Abstract:

Advances in computing technology and bioinformatics mean that medical research is increasingly characterized by large international consortia of researchers that are reliant on large data sets and biobanks. These trends raise a number of challenges for obtaining consent, protecting participant privacy concerns and maintaining public trust. Participant-centred initiatives (PCIs) use social media technologies to address these immediate concerns, but they also provide the basis for long-term int...

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Publisher copy:
10.1038/nrg3218

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Journal:
Nature Reviews Genetics
Volume:
13
Issue:
5
Pages:
371-376
Publication date:
2012-05-05
DOI:
EISSN:
1471-0064
ISSN:
1471-0056
URN:
uuid:0d1322f1-efcb-41cc-a85a-71fe3623cca4
Source identifiers:
325910
Local pid:
pubs:325910
Language:
English

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