Journal article
The top 10 research priorities in psoriatic arthritis: a James Lind Alliance Priority Setting Partnership
- Abstract:
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Objectives
To identify and prioritize the top 10 research questions for PsA.
Methods
The British Psoriatic Arthritis Consortium (BritPACT) formed a Priority Setting Partnership (PSP) comprising of people living with PsA, carers and clinicians, supported by the James Lind Alliance (JLA). This PSP followed the established three-stage JLA process: first, an online survey of people living with PsA, carers and clinicians to identify PsA questions, asking, ‘What do you think are the most important unanswered questions in psoriatic arthritis research?’ The questions were checked against existing evidence to establish ‘true uncertainties’ and grouped as ‘indicative questions’ reflecting the overarching themes. Then a second online survey ranked the ‘true uncertainties’ by importance. Finally, a workshop including people living with PsA and clinician stakeholders finalized the top 10 research priorities.
Results
The initial survey attracted 317 respondents (69% people living with PsA, 15% carers), with 988 questions. This generated 46 indicative questions. In the second survey, 422 respondents (78% people living with PsA, 4% carers) prioritized these. Eighteen questions were taken forward to the final online workshop. The top unanswered PsA research question was ‘What is the best strategy for managing patients with psoriatic arthritis including non-drug and drug treatments?’ Other top 10 priorities covered diagnosis, prognosis, outcome assessment, flares, comorbidities and other aspects of treatment (https://www.jla.nihr.ac.uk).
Conclusion
The top 10 priorities will guide PsA research and enable PsA researchers and those who fund research to know the most important questions for people living with PsA.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
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- Files:
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(Preview, Version of record, pdf, 628.7KB, Terms of use)
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- Publisher copy:
- 10.1093/rheumatology/keac676
Authors
- Publisher:
- Oxford University Press
- Journal:
- Rheumatology More from this journal
- Volume:
- 62
- Issue:
- 8
- Pages:
- 2716–2723
- Publication date:
- 2022-12-01
- Acceptance date:
- 2022-11-23
- DOI:
- EISSN:
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1462-0332
- ISSN:
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1462-0324
- Language:
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English
- Keywords:
- Pubs id:
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1308936
- Local pid:
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pubs:1308936
- Deposit date:
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2022-11-24
Terms of use
- Copyright holder:
- Hailey et al
- Copyright date:
- 2022
- Rights statement:
- © The Author(s) 2022. Published by Oxford University Press on behalf of the British Society for Rheumatology. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
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