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Desiderata for digital consent in genomic research.

Abstract:

Herein, we describe the characterization of a Digital Consent (DC) System to support current ethical-legal issues associated with challenges posed by informed consent for genomic research. A potential solution to support ongoing interaction with patients and allow control over how their data and samples are being used in genomic research can be Digital Consent based. But there are other challenges that need to be addressed, such as incidental findings when analyzing the results of genomic tes...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Publisher's version

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Publisher copy:
10.1007/s12687-017-0355-z

Authors


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ORCID:
0000-0003-2609-575X
More by this author
Institution:
University of Oxford
Division:
Medical Sciences Division
Department:
Nuffield Department of Population Health; Population Health
Moreno-Conde, A More by this author
More by this author
Institution:
University of Oxford
Division:
Medical Sciences Division
Department:
Nuffield Department of Population Health; Population Health
Nuñez-Benjumea, F More by this author
Platform for Innovation in Medical and Healthcare Technologies More from this funder
Carlos III National Institute of Health More from this funder
European Cooperation in Science and Technology More from this funder
European Regional Development Funds More from this funder
European Regional Development Funds More from this funder
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Publisher:
Springer Publisher's website
Journal:
Journal of Community Genetics Journal website
Volume:
9
Issue:
2
Pages:
191-194
Publication date:
2018-01-23
Acceptance date:
2017-12-26
DOI:
EISSN:
1868-6001
ISSN:
1868-310X
Pubs id:
pubs:821308
URN:
uri:ff1213a4-5d16-4a5e-bd3d-64f25edfb8fc
UUID:
uuid:ff1213a4-5d16-4a5e-bd3d-64f25edfb8fc
Local pid:
pubs:821308
Language:
English
Keywords:

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