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Data Access Committees

Abstract:

Background
Sharing de-identified individual-level health research data is widely promoted and has many potential benefits. However there are also some potential harms, such as misuse of data and breach of participant confidentiality. One way to promote the benefits of sharing while ameliorating its potential harms is through the adoption of a managed access approach where data requests are channeled through a Data Access Committee (DAC), rather than making data openly... Expand abstract
Publication status:
Published
Peer review status:
Peer reviewed

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Files:
Publisher copy:
10.1186/s12910-020-0453-z

Authors


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Institution:
University of Oxford
Division:
MSD
Department:
NDM
Sub department:
Tropical Medicine
Role:
Author
ORCID:
0000-0001-6327-3266
More by this author
Role:
Author
ORCID:
0000-0003-1298-736X
Publisher:
BioMed Central
Journal:
BMC Medical Ethics More from this journal
Volume:
21
Issue:
1
Article number:
12
Publication date:
2020-02-03
Acceptance date:
2020-01-28
DOI:
EISSN:
1472-6939
Pmid:
32013947
Language:
English
Keywords:
Pubs id:
1086202
Local pid:
pubs:1086202
Deposit date:
2021-07-22

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