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A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks

Abstract:

The ability to use clinical and research data at scale is central to hopes for data-driven medicine. However, in using such data researchers often encounter hurdles–both technical, such as differing data security requirements, and social, such as the terms of informed consent, legal requirements and patient and public trust. Federated or distributed data networks have been proposed and adopted in response to these hurdles. However, to date there has been little consideration of how FDNs re...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.3389/fdata.2022.945739

Authors


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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Author
ORCID:
0000-0002-7191-901X
Publisher:
Frontiers Media
Journal:
Frontiers in Big Data More from this journal
Volume:
5
Article number:
945739
Publication date:
2022-09-16
Acceptance date:
2022-08-08
DOI:
EISSN:
2624-909X
ISSN:
2624-909X
Pmid:
36238653
Language:
English
Keywords:
Pubs id:
1285685
Local pid:
pubs:1285685
Deposit date:
2023-02-02

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