- Abstract:
-
The future holds the possibility to link and network biobanks, existing biorepositories and reference databases for research purposes in ways that have not been possible before. There is the potential to develop 'research portals' that will enable researchers to access these research resources that are located around the globe with the click of a mouse. In this paper, I will argue that our current governance system for research is unable to provide all of the oversight and accountability mech...
Expand abstract - Publication status:
- Published
- Publisher copy:
- 10.1007/s00439-011-1063-0
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- Journal:
- Human genetics
- Volume:
- 130
- Issue:
- 3
- Pages:
- 377-382
- Publication date:
- 2011-09-05
- DOI:
- EISSN:
-
1432-1203
- ISSN:
-
0340-6717
- URN:
-
uuid:d73cf39d-2bfa-40ab-bad7-7f76f106a44c
- Source identifiers:
-
167762
- Local pid:
- pubs:167762
- Language:
- English
- Keywords:
- Copyright date:
- 2011
Journal article
From single biobanks to international networks: developing e-governance.
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