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"Holding your breath": Interviews with young people who have undergone predictive genetic testing for huntington disease

Abstract:

Guidelines recommend that predictive genetic testing for Huntington disease (HD) should be deferred until the age of majority (18 years in most countries). However, opposition to these guidelines exists, with some professionals arguing that testing may be beneficial for young people, and should be considered much earlier. Empirical evidence is unable to substantiate either position. We aimed to (1) explore the experience of predictive genetic testing for HD from the young person's perspective...

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Publisher copy:
10.1002/ajmg.a.31720

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Institution:
University of Oxford
Department:
Oxford, HUM, Philosophy, Philosophy Postholders
Role:
Author
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Journal:
American Journal of Medical Genetics, Part A
Volume:
143
Issue:
17
Pages:
1984-1989
Publication date:
2007-09-01
DOI:
EISSN:
1552-4833
ISSN:
1552-4825
URN:
uuid:d532ed9f-0725-4a0c-aec7-d4cbfcab8dca
Source identifiers:
192637
Local pid:
pubs:192637

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