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"You're one of us now": Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)

Abstract:

There has been much debate about the psychosocial effects of predictive genetic testing in minors. The majority of this debate has been theoretical, with little empirical evidence published. We conducted in-depth interviews with 18 young people who had undergone testing, to explore the range of harms and benefits that they perceived were associated with their tests. Participants were eight individuals who were tested for Huntington disease (two gene-positive, six gene-negative) and ten who we...

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Publisher copy:
10.1002/ajmg.c.30158

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Institution:
University of Oxford
Division:
HUMS
Department:
Philosophy Faculty
Role:
Author
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Journal:
American Journal of Medical Genetics, Part C: Seminars in Medical Genetics
Volume:
148
Issue:
1
Pages:
47-55
Publication date:
2008-02-15
DOI:
EISSN:
1552-4876
ISSN:
1552-4868
Source identifiers:
192624
Language:
English
Keywords:
Pubs id:
pubs:192624
UUID:
uuid:ca85b25d-abdb-447f-bc22-582ae06a2353
Local pid:
pubs:192624
Deposit date:
2012-12-19

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