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Journal article

From consent to institutions: designing adaptive governance for genomic biobanks.

Abstract:

Biobanks are increasingly hailed as powerful tools to advance health research. The social and ethical challenges associated with the implementation and operation of biobanks are equally well-documented. One of the proposed solutions to these challenges involves trading off a reduction in the specificity of informed consent protocols with an increased emphasis on governance. However, little work has gone into formulating what such governance might look like. In this paper, we suggest four gene...

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Publication status:
Published

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Journal:
Social science and medicine (1982)
Volume:
73
Issue:
3
Pages:
367-374
Publication date:
2011-08-01
DOI:
EISSN:
1873-5347
ISSN:
0277-9536
Source identifiers:
166674
Language:
English
Keywords:
Pubs id:
pubs:166674
UUID:
uuid:c9f26c6c-75de-4041-a072-204858c0f8e7
Local pid:
pubs:166674
Deposit date:
2012-12-19

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