Journal article icon

Journal article

From consent to institutions: designing adaptive governance for genomic biobanks.

Abstract:

Biobanks are increasingly hailed as powerful tools to advance health research. The social and ethical challenges associated with the implementation and operation of biobanks are equally well-documented. One of the proposed solutions to these challenges involves trading off a reduction in the specificity of informed consent protocols with an increased emphasis on governance. However, little work has gone into formulating what such governance might look like. In this paper, we suggest four gene...

Expand abstract
Publication status:
Published

Actions


Access Document


Authors


O'Doherty, KC More by this author
Burgess, MM More by this author
Edwards, K More by this author
Gallagher, RP More by this author
Hawkins, AK More by this author
Expand authors...
Journal:
Social science and medicine (1982)
Volume:
73
Issue:
3
Pages:
367-374
Publication date:
2011-08-05
DOI:
EISSN:
1873-5347
ISSN:
0277-9536
URN:
uuid:c9f26c6c-75de-4041-a072-204858c0f8e7
Source identifiers:
166674
Local pid:
pubs:166674

Terms of use


Metrics



If you are the owner of this record, you can report an update to it here: Report update to this record

TO TOP