Journal article icon

Journal article

“I would like to discuss it further with an expert”: a focus group study of Finnish adults’ perspectives on genetic secondary findings

Abstract:

Lowered costs of genomic sequencing facilitate analyzing large segments of genetic data. Ethical debate has focused on whether and what kind of incidental or secondary findings (SFs) to report, and how to obtain valid informed consent. However, people's support needs after receiving SFs have received less attention. We explored Finnish adults' perspectives on reporting genetic SFs. In this qualitative study which included four focus group discussions (N = 23) we used four vignette letters, ea...

Expand abstract
Publication status:
Published
Peer review status:
Peer reviewed
Version:
Accepted Manuscript

Actions


Access Document


Files:
Publisher copy:
10.1007/s12687-018-0356-6

Authors


More by this author
ORCID:
0000-0002-8727-4180
Aktan-Collan, K More by this author
More by this author
Institution:
University of Oxford
Division:
Medical Sciences Division
Department:
Nuffield Department of Population Health
Konttinen, H More by this author
Kääriäinen, H More by this author
Expand authors...
Publisher:
Springer Berlin Heidelberg Publisher's website
Journal:
Journal of Community Genetics Journal website
Volume:
9
Issue:
3
Pages:
305–314
Publication date:
2018-01-16
Acceptance date:
2018-01-02
DOI:
EISSN:
1868-6001
ISSN:
1868-310X
Pubs id:
pubs:821516
URN:
uri:bab06263-b5e5-4ca8-975f-7de21638d251
UUID:
uuid:bab06263-b5e5-4ca8-975f-7de21638d251
Local pid:
pubs:821516

Terms of use


Metrics



If you are the owner of this record, you can report an update to it here: Report update to this record

TO TOP