Journal article
Use of broad consent and related procedures in genomics research: perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia
- Abstract:
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The use of broad consent for genomics research raises important ethical questions for the conduct of genomics research, including relating to its acceptability to research participants and comprehension of difficult scientific concepts. To explore these and other challenges, we conducted a study using qualitative methods with participants enrolled in an H3Africa Rheumatic Heart Disease genomics study (the RHDGen network) in Zambia to explore their views on broad consent, sample and data shari...
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- Publication status:
- Published
- Peer review status:
- Peer reviewed
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(Version of record, 1.7MB)
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- Publisher copy:
- 10.1080/11287462.2019.1592868
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Authors
Bibliographic Details
- Publisher:
- Taylor and Francis Publisher's website
- Journal:
- Global Bioethics Journal website
- Volume:
- 31
- Issue:
- 1
- Pages:
- 184-199
- Publication date:
- 2019-03-24
- Acceptance date:
- 2019-03-06
- DOI:
- EISSN:
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1591-7398
- ISSN:
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1128-7462
- Source identifiers:
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994769
Item Description
- Language:
- English
- Keywords:
- Pubs id:
-
pubs:994769
- UUID:
-
uuid:b6baa291-66d2-4bcb-9cf9-de1eca3406ab
- Local pid:
- pubs:994769
- Deposit date:
- 2019-04-29
Terms of use
- Copyright holder:
- Mweemba, O et al.
- Copyright date:
- 2019
- Rights statement:
- © 2019 The Author(s). Published by Informa UK Limited, trading as Taylor and Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
- Licence:
- CC Attribution (CC BY)
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