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Journal article

Use of broad consent and related procedures in genomics research: perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

Abstract:

The use of broad consent for genomics research raises important ethical questions for the conduct of genomics research, including relating to its acceptability to research participants and comprehension of difficult scientific concepts. To explore these and other challenges, we conducted a study using qualitative methods with participants enrolled in an H3Africa Rheumatic Heart Disease genomics study (the RHDGen network) in Zambia to explore their views on broad consent, sample and data shari...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1080/11287462.2019.1592868

Authors


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Role:
Author
ORCID:
0000-0001-6641-8950
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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Oxford college:
St Cross College
Role:
Author
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Publisher:
Taylor and Francis Publisher's website
Journal:
Global Bioethics Journal website
Volume:
31
Issue:
1
Pages:
184-199
Publication date:
2019-03-24
Acceptance date:
2019-03-06
DOI:
EISSN:
1591-7398
ISSN:
1128-7462
Source identifiers:
994769
Language:
English
Keywords:
Pubs id:
pubs:994769
UUID:
uuid:b6baa291-66d2-4bcb-9cf9-de1eca3406ab
Local pid:
pubs:994769
Deposit date:
2019-04-29

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