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Journal article

Fear of dementia and the obligation to provide aggregate research results to study participants

Abstract:

A general obligation to make aggregate research results available to participants has been widely supported in the bioethics literature. However, dementia research presents several challenges to this perspective, particularly because of the fear associated with developing dementia. The authors argue that considerations of respect for persons, beneficence, and justice fail to justify an obligation to make aggregate research results available to participants in dementia research. Nevertheless, ...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1017/s0963180122000408

Authors


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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author
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Name:
Wellcome Trust
Grant:
203132/Z/16/Z
Publisher:
Cambridge University Press
Journal:
Cambridge Quarterly of Healthcare Ethics More from this journal
Volume:
31
Issue:
4
Pages:
498-505
Publication date:
2022-11-18
Acceptance date:
2022-10-01
DOI:
EISSN:
1469-2147
ISSN:
0963-1801
Pmid:
36398509
Language:
English
Keywords:
Pubs id:
1309079
Local pid:
pubs:1309079
Deposit date:
2022-12-19

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