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Facilitating the ethical use of health data for the benefit of society: Electronic health records, consent and the duty of easy rescue

Abstract:

Advances in data science allow for sophisticated analysis of increasingly large data sets. In the medical context, large volumes of data collected for health care purposes are contained in electronic health records. The real-life character and sheer amount of data contained in them makes electronic health records an attractive resource for public health and biomedical research. However, medical records contain sensitive information that could be misused by third parties. Medical confidentiali...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Publisher's version

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Publisher copy:
10.1098/rsta.2016.0130

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Department:
Oxford, HUM, Philosophy Faculty
Role:
Author
Publisher:
Royal Society Publisher's website
Journal:
Philosophical Transactions A Journal website
Volume:
374
Issue:
2083
Pages:
0130
Publication date:
2016-11-14
Acceptance date:
2016-09-12
DOI:
EISSN:
1471-2962
ISSN:
1364-503X
Pubs id:
pubs:642361
URN:
uri:ace4faee-35a6-4c61-90a6-c7cc8580b027
UUID:
uuid:ace4faee-35a6-4c61-90a6-c7cc8580b027
Local pid:
pubs:642361
Paper number:
2083

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