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Returning genome sequences to research participants: policy and practice

Abstract:

Despite advances in genomic science stimulating an explosion of literature around returning health-related findings, the possibility of returning entire genome sequences to individual research participants has not been widely considered. Through direct involvement in large-scale translational genomics studies, we have identified a number of logistical challenges that would need to be overcome prior to returning individual genome sequence data, including verifying that the data belong to the r...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Version of record

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Publisher copy:
10.12688/wellcomeopenres.10942.1

Authors


Wright, CF More by this author
Middleton, A More by this author
Barrett, JC More by this author
FitzPatrick, DR More by this author
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Publisher:
F1000Research Publisher's website
Journal:
Wellcome Open Research Journal website
Volume:
2
Issue:
15
Publication date:
2017-02-24
Acceptance date:
2017-02-01
DOI:
EISSN:
2398-502X
ISSN:
2398-502X
Pubs id:
pubs:687806
URN:
uri:a59e5da4-9d71-4376-abab-d98ed756ede6
UUID:
uuid:a59e5da4-9d71-4376-abab-d98ed756ede6
Local pid:
pubs:687806

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