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Journal article

From Rosalind Franklin to Barack Obama: data sharing challenges and solutions in genomics and personalised medicine

Abstract:

The collection, storage and use of genomic and clinical data from patients and healthy individuals is a key component of personalised medicine enterprises such as the Precision Medicine Initiative, the Cancer Moonshot and the 100,000 Genomes Project. In order to maximise the value of this data, it is important to embed a culture within the scientific, medical and patient communities that supports the appropriate sharing of genomic and clinical information. However, this aspiration raises a nu...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Publisher's Version

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Publisher copy:
10.1080/20502877.2017.1314883

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Institution:
University of Oxford
Division:
Medical Sciences Division
Department:
Oncology
Subgroup:
CRUK/MRC Ox Inst Radiation Oncology
Publisher:
Taylor and Francis Publisher's website
Journal:
New Bioethics Journal website
Volume:
23
Issue:
1
Pages:
64–73
Publication date:
2017-05-18
DOI:
EISSN:
2050-2885
ISSN:
2050-2877
Pubs id:
pubs:695890
URN:
uri:a1e92702-efb8-4530-8846-97e60ca7aab8
UUID:
uuid:a1e92702-efb8-4530-8846-97e60ca7aab8
Local pid:
pubs:695890

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