SATURN: assessing the feasibility of utilising existing registries for real-world evidence data collection to meet patients, regulatory, health technology assessment and payer requirements (Orphanet Journal of Rare Diseases, 2024)

(untitled) - Sangiorgi, L; Boarini, M; Mordenti, M; Wang, V; Westerheim, I; Skarberg, RT; Cavaller-Bellaubi, M; Clancy, J; Pinedo-Villanueva, R; Lente, EJV; Marchetti, M