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Journal article

The impact of perceived lack of support provided by health and social care services to caregivers of people with motor neuron disease.

Abstract:

Our objective was to investigate the relationship between support by health and social care services and caregiver well-being. A survey, including a generic health status measure (SF-12), a disease-specific measure for patients (ALSAQ-40), the Carer Strain Index (CSI) for caregivers and questions on experiences of health and social care services, was sent to patient members of the MND Association (UK) and their caregivers. A single 'problem score' was calculated from the experience questions ...

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Publication status:
Published

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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author
More by this author
Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author
More by this author
Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author
Journal:
Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases
Volume:
13
Issue:
2
Pages:
223-228
Publication date:
2012-02-01
DOI:
EISSN:
1471-180X
ISSN:
1748-2968
Source identifiers:
245730
Language:
English
Keywords:
Pubs id:
pubs:245730
UUID:
uuid:9beeb612-cf3f-47c2-b37b-8dc4794252ae
Local pid:
pubs:245730
Deposit date:
2012-12-19

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