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The impact of perceived lack of support provided by health and social care services to caregivers of people with motor neuron disease.

Abstract:

Our objective was to investigate the relationship between support by health and social care services and caregiver well-being. A survey, including a generic health status measure (SF-12), a disease-specific measure for patients (ALSAQ-40), the Carer Strain Index (CSI) for caregivers and questions on experiences of health and social care services, was sent to patient members of the MND Association (UK) and their caregivers. A single 'problem score' was calculated from the experience questions ...

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Publication status:
Published

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Institution:
University of Oxford
Department:
Oxford, MSD, Population Health
More by this author
Institution:
University of Oxford
Department:
Oxford, MSD, Population Health
Playford, ED More by this author
More by this author
Institution:
University of Oxford
Department:
Oxford, MSD, Population Health
Journal:
Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases
Volume:
13
Issue:
2
Pages:
223-228
Publication date:
2012-02-05
DOI:
EISSN:
1471-180X
ISSN:
1748-2968
URN:
uuid:9beeb612-cf3f-47c2-b37b-8dc4794252ae
Source identifiers:
245730
Local pid:
pubs:245730

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