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Journal article

Ethical review of research into rare genetic disorders

Abstract:
Although some work on rare diseases is clearly clinical investigation and some clearly research, much activity falls uneasily between the two. Where should we draw the line and how can we ensure research gets appropriate ethical review?

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  • (pdf, 97.4KB)
Journal:
British Medical Journal (BMJ)
Publication date:
2004-01-01
Local pid:
ora:818

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