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The ethics of crowdfunding in paediatric neurology

Abstract:

In the last decade, there has been a dramatic increase in the number of families resorting to internet-based public appeals to fund access to novel, highly expensive, or experimental therapies for rare disorders. Medical crowdfunding may provide a means to fund treatments or interventions, but it raises individual and societal ethical questions. In this review, we consider the ethical challenges crowdfunding poses in paediatric neurology, drawing on the example of gene therapy for spinal musc...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1111/dmcn.15442

Authors


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Institution:
University of Oxford
Division:
HUMS
Department:
Philosophy Faculty
Role:
Author
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Name:
Wellcome Trust
Grant:
203132/Z/16/Z
Publisher:
Wiley
Journal:
Developmental Medicine and Child Neurology More from this journal
Volume:
65
Issue:
4
Pages:
450-455
Publication date:
2022-10-21
Acceptance date:
2022-09-26
DOI:
EISSN:
1469-8749
ISSN:
0012-1622
Language:
English
Keywords:
Pubs id:
1280061
Local pid:
pubs:1280061
Deposit date:
2022-09-28

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