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Feedback of individual genetic results to research participants: is it feasible in Europe?

Abstract:

There is growing consensus that individual genetic research results that are scientifically robust, analytically valid, and clinically actionable should be offered to research participants. However, the general practice in European research projects is that results are usually not provided to research participants for many reasons. This article reports on the views of European experts and scholars who are members of the European COST Action CHIP ME IS1303 (Citizen's Health through public-priv...

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Publication status:
Published
Peer review status:
Peer reviewed

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Files:
Publisher copy:
10.1089/bio.2015.0115

Authors


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Role:
Author
ORCID:
0000-0003-4156-1464
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Role:
Author
ORCID:
0000-0001-8554-7619
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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author
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Funding agency for:
Kaye, J
Grant:
096599/2/11/Z
Publisher:
Mary Ann Liebert Publisher's website
Journal:
Biopreservation and Biobanking Journal website
Volume:
14
Issue:
3
Pages:
241-248
Publication date:
2016-06-01
Acceptance date:
2016-04-01
DOI:
EISSN:
1947-5543
ISSN:
1947-5535
Pmid:
27082461
Source identifiers:
617640
Language:
English
Keywords:
Pubs id:
pubs:617640
UUID:
uuid:8419b899-272f-4eb9-935a-2d022a4e8be7
Local pid:
pubs:617640
Deposit date:
2017-11-30

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