- Abstract:
-
There is growing consensus that individual genetic research results that are scientifically robust, analytically valid, and clinically actionable should be offered to research participants. However, the general practice in European research projects is that results are usually not provided to research participants for many reasons. This article reports on the views of European experts and scholars who are members of the European COST Action CHIP ME IS1303 (Citizen's Health through public-priv...
Expand abstract - Publication status:
- Published
- Peer review status:
- Peer reviewed
- Version:
- Publisher's version
- Files:
-
-
(pdf, 197.8kb)
-
- Publisher copy:
- 10.1089/bio.2015.0115
-
Version unsuitable
-
We have not obtained a suitable full-text for a given research output. See this page for more information.
-
Recently completed
-
Sometimes content is held in ORA but is unavailable for a fixed period of time to comply with the policies and wishes of rights holders.
-
Permissions
-
All content made available in ORA should comply with relevant rights, such as copyright. See this page for more information.
-
Clearance
-
Some thesis volumes scanned as part of the digitisation scheme funded by Dr Leonard Polonsky are currently unavailable due to sensitive material or uncleared third-party copyright content. We are attempting to contact authors whose theses are affected.
- Publisher:
- Mary Ann Liebert Publisher's website
- Journal:
- Biopreservation and Biobanking Journal website
- Volume:
- 14
- Issue:
- 3
- Pages:
- 241-248
- Publication date:
- 2016-06-01
- Acceptance date:
- 2016-04-01
- DOI:
- EISSN:
-
1947-5543
- ISSN:
-
1947-5535
- Pubs id:
-
pubs:617640
- URN:
-
uri:8419b899-272f-4eb9-935a-2d022a4e8be7
- UUID:
-
uuid:8419b899-272f-4eb9-935a-2d022a4e8be7
- Local pid:
- pubs:617640
- Language:
- English
- Keywords:
- Copyright holder:
- © Isabelle Budin-Ljøsne et al., 2016
- Copyright date:
- 2016
- Notes:
-
This Open Access article is distributed under the terms of the
Creative Commons Attribution Noncommercial License (http://creativecommons.org/licenses/by-nc/4.0/) which permits any noncommercial
use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited
Journal article
Feedback of individual genetic results to research participants: is it feasible in Europe?
Actions
Access Document
Why is the content I wish to access not available via ORA?
Bibliographic data (the information relating to research outputs) and full-text items (e.g. articles, theses, reports, etc.) arrive in ORA from several different sources. Unfortunately we are not able to make available the full-text for every research output.
Please contact the ORA team (
) if you have queries regarding unavailable content OR if you are aware of a full-text copy we can make available.
) if you have queries regarding unavailable content OR if you are aware of a full-text copy we can make available.
Content may be unavailable for the following four reasons
Alternative access to the full-text
You may be able to access the full-text directly from the publisher's website using the 'Publisher Copy' link in the 'Links & Downloads' box from a research output's ORA record page. This method may require an institutional or individual subscription to the journal/resource.
Authors
Funding
Bibliographic Details
Item Description
Terms of use
Metrics
Altmetrics
Dimensions
If you are the owner of this record, you can report an update to it here: Report update to this record