Journal article
Feedback of individual genetic results to research participants: is it feasible in Europe?
- Abstract:
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There is growing consensus that individual genetic research results that are scientifically robust, analytically valid, and clinically actionable should be offered to research participants. However, the general practice in European research projects is that results are usually not provided to research participants for many reasons. This article reports on the views of European experts and scholars who are members of the European COST Action CHIP ME IS1303 (Citizen's Health through public-priv...
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- Publication status:
- Published
- Peer review status:
- Peer reviewed
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- Files:
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(Version of record, pdf, 197.8KB)
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- Publisher copy:
- 10.1089/bio.2015.0115
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Authors
Funding
Bibliographic Details
- Publisher:
- Mary Ann Liebert Publisher's website
- Journal:
- Biopreservation and Biobanking Journal website
- Volume:
- 14
- Issue:
- 3
- Pages:
- 241-248
- Publication date:
- 2016-06-01
- Acceptance date:
- 2016-04-01
- DOI:
- EISSN:
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1947-5543
- ISSN:
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1947-5535
- Pmid:
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27082461
- Source identifiers:
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617640
Item Description
- Language:
- English
- Keywords:
- Pubs id:
-
pubs:617640
- UUID:
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uuid:8419b899-272f-4eb9-935a-2d022a4e8be7
- Local pid:
- pubs:617640
- Deposit date:
- 2017-11-30
Terms of use
- Copyright holder:
- © Isabelle Budin-Ljøsne et al, 2016
- Copyright date:
- 2016
- Notes:
-
This Open Access article is distributed under the terms of the
Creative Commons Attribution Noncommercial License (http://creativecommons.org/licenses/by-nc/4.0/) which permits any noncommercial
use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited
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