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Governing genetic databases: Challenges facing research regulation and practice

Abstract:

This paper reports on the initial findings of an interdisciplinary research project on the governance of human genetic databases in England and Wales. The number of biosample and information collections has expanded, yet considerable legal uncertainty surrounds their definition, collection, storage, management, and use which could inhibit research and clinical practice, while failing to protect the rights and interests of all stakeholders. We report some initial findings from the legal resear...

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Publication status:
Published

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Authors


Gibbons, SMC More by this author
More by this author
Institution:
University of Oxford
Department:
Oxford, MSD, Population Health
Journal:
JOURNAL OF LAW AND SOCIETY
Volume:
34
Issue:
2
Pages:
163-189
Publication date:
2007-06-05
DOI:
EISSN:
1467-6478
ISSN:
0263-323X
URN:
uuid:7e604096-68da-4de9-a877-f9b6571cbcf2
Source identifiers:
162856
Local pid:
pubs:162856
Language:
English

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