Journal article : Review
Understanding what it is like to experience pain as you grow up: a poetic meta-ethnography
- Abstract:
- A recent Lancet Commission raised concerns about the management of child and adolescent pain. We aimed to undertake a comprehensive review of qualitative research to understand children and adolescent pain experiences across contexts. We used the 7 stages of meta-ethnography to synthesise findings. We combined the strengths of arts-based methods, translating themes into poems in a range of languages. We screened 7471 titles, 464 abstracts, and 302 full texts, including 189 reports (177 unique samples) incorporating 5875 young people. Age range across studies was 2 to 38 years, with 93% including those between the age of 11 and 20 years old. Studies spanned 30 years (1993-2023) with 121 (64%) published in the last 10 years. Almost all (93%) were set-in high-income countries. We report 6 themes focusing on transition to adulthood: (1) I want to stay within the safety of home; (2) don't exclude me from my own care; (3) it might hurt but it's for my own good; (4) I rely on others but I want some independence; (5) I am no longer a child but I am not an adult yet; and (6) I wasn't prepared for the transfer to adult health care. Our findings focus on the complex transition into adulthood and the importance of creating a genuine healthcare partnership with young people by acknowledging their perspectives, creating a safe and supportive environment, and preparing them for the transition to adult pain care. Arts-based methods have the potential to make findings from qualitative evidence syntheses accessible and impactful for compassionate health care.
- Publication status:
- Published
- Peer review status:
- Peer reviewed
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(Preview, Version of record, pdf, 1.7MB, Terms of use)
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- Publisher copy:
- 10.1097/j.pain.0000000000003420
Authors
- Publisher:
- Lippincott, Williams & Wilkins
- Journal:
- Pain More from this journal
- Volume:
- 166
- Issue:
- 1
- Pages:
- 24-33
- Publication date:
- 2024-10-18
- Acceptance date:
- 2024-05-22
- DOI:
- EISSN:
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1872-6623
- ISSN:
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0304-3959
- Language:
-
English
- Keywords:
- Subtype:
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Review
- Pubs id:
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2042026
- Local pid:
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pubs:2042026
- Deposit date:
-
2024-10-25
Terms of use
- Copyright holder:
- Toye et al.
- Copyright date:
- 2024
- Rights statement:
- Copyright © 2024 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the International Association for the Study of Pain. This is an open access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.
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