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Journal article

Health-related quality of life in ANCA-associated vasculitis and item generation for a disease-specific patient-reported outcome measure

Abstract:

Objective

The antineutrophil cytoplasmic antibody (ANCA)-associated vasculitides (AAVs) are multisystem diseases of the small blood vessels. Patients experience irreversible damage and psychological effects from AAV and its treatment. An international collaboration was created to investigate the impact of AAV on health-related quality of life (HRQoL), and develop a disease-specific patient-reported outcome measure to assess outcomes of importance to patients.

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.2147/prom.s144992

Authors


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Role:
Author
ORCID:
0000-0002-2358-1333
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Vasculitis Clinical Research Consortium More from this funder
University of Oxford More from this funder
University of Ottawa More from this funder
Oxfordshire Health Services Research Committee More from this funder
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Publisher:
Dove Press Publisher's website
Journal:
Patient Related Outcome Measures Journal website
Volume:
9
Pages:
17-34
Publication date:
2018-01-04
Acceptance date:
2017-10-13
DOI:
EISSN:
1179-271X
ISSN:
1179-271X
Pmid:
29379322
Source identifiers:
823234
Language:
English
Keywords:
Pubs id:
pubs:823234
UUID:
uuid:6dd1f63e-278a-42e6-8c5a-d58cb78e6452
Local pid:
pubs:823234
Deposit date:
2018-06-13

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